Summary

The Data for Health Initiative’s Data Impact team in Indonesia is seeking a consultant to support the National Health Policy Agency (BKPK), Ministry of Health of Indonesia in the development of strategic design and associated technical material for the National Disease Registry Regulatory Framework.

Background

This activity is implemented in line with the mandate of the Ministry of Health of Indonesia to strengthen health system governance, improve evidence-based policymaking, and support the national health transformation agenda. The development of a regulatory framework for a national disease registry system is aligned with existing national policies on health information systems, digital health transformation, and data governance, including the implementation of the SATUSEHAT platform and national data integration initiatives. Disease registries play a critical role in generating high-quality health data for disease surveillance, burden of disease estimation, health system planning, financing, and monitoring progress toward Universal Health Coverage (UHC).

In Indonesia, multiple disease-specific registries currently exist; however, these systems are fragmented, unevenly regulated, and lack a unified governance. The absence of a comprehensive regulatory framework has resulted in challenges related to data interoperability, legal protection, institutional roles, individual data security, and long-term sustainability. A clear regulatory umbrella is required to ensure that disease registries operate in a standardized, ethical, secure, and sustainable manner, while supporting national policy priorities and collaboration with international partners.

The purpose of this activity is to establish a robust and operationally feasible regulatory framework that governs the establishment, management, and utilization of a National Disease Registry System in Indonesia.

Objectives

The consultant, working with BKPK, will establish a clear and coherent regulatory framework for disease registries in Indonesia. This includes defining the legal basis for disease registries across diseases and levels of care, setting out governance arrangements with clear institutional roles and responsibilities, and ensuring compliance with data protection, privacy, and ethical standards.

The consultant will develop a roadmap for developing the National Disease Registry in the National Health Information System (SATU SEHAT) which will be interoperable with other health information systems i.e. SIMPUS, SIMRS, SIAK, etc.

Scope and Limitations

The consultancy focuses on policy and regulatory development at the national level. It does not include software development, system implementation, or operational deployment of disease registries at the facility level.

Scope of Work

Under the guidance of BKPK, the Consultant will lead:

1. Regulatory Drafting

• Review existing regulation and identify gaps
• Draft a Ministerial Regulation in line with:
  • Health Law
  • SPBE Regulation
  • Satu Data Indonesia Regulation
  • Personal Data Protection Law
• Draft supporting associated and relevant technical documents.
• Prepare a policy brief for the National Disease Registries and any essential advocacy material, such as powerpoint presentation or 2-pager for sharing with stakeholders and decision-makers.

2. Stakeholder Mapping & Political Economy Analysis

• Conduct comprehensive stakeholder mapping, including:
  • Bappenas, Ministry of Finance, Ministry of Home Affairs
  • BPS, BPJS Kesehatan
  • MoH Directorates and PUSDATIN
  • Provincial/District Health Offices, hospitals, Puskesmas, private sector
• Identify political, institutional, and operational risks and mitigation strategies.

3. National Roadmap Development (2026–2030)

• Develop a phased roadmap covering:
  • Policy and regulatory milestones
  • Technology and infrastructure
  • Human resources
  • Financing and budgeting
  • Monitoring, evaluation, and learning agenda

Expected Outputs / Deliverables

• Regulatory landscape and gap analysis report
• Draft Ministerial Regulation and technical annexes
• Stakeholder mapping and political economy analysis report
• National Disease Registry Roadmap 2026–2030

Duration & Location

• Duration: Up to 45 days over 9 months. Vital Strategies may issue a contract for an initial scope of work, with the option to extend this based on performance and successful completion of agreed deliverables.
• Location: Jakarta-based, with domestic travel as required

Qualifications of the Consultant

• Advanced degree in medicine, public health, public policy, or health informatics
• Minimum 5 years of experience in health policy, regulation, or national HIS development
• Previous experience working with government stakeholders
• Proven experience drafting Ministerial Regulations or national policies
• Strong understanding of Indonesia’s health system and decentralization
• Ability to work independently
• Strong organizational and verbal and written communication skills

 Instructions for Applicants

Candidates should submit a CV and cover letter to grai@vitalstrategies.org. Please use ‘Indonesia National Disease Registry Consultant’ as subject in your submission. Provide a quote for the total consultancy, including an estimate of the number of days needed per deliverable and the daily rate. Please include proposal with planned methodology and timeline. Note any additional services you provide that will benefit this project.

Due Date. Interests must be submitted in PDF format by 10 March 2026.